Only Mr. Pansy

Only Mr. Pansy

Something Pansy Found 2 Lifetimes Ago

Let me not pray to be sheltered from dangers, But to be fearless in facing them.
Let me not beg for the stilling of my pain,
But for the heart to conquer it.
Let me not look for allies in life's battlefield,
But to my own strength.
Let me not crave in anxious fear to be saved,
But hope for the patience to win my freedom.
Grant me that I may not be a coward,
Feeling your mercy in my success alone,
But let me find the grasp of your hand in my failure.

Rabindranath Tagore (1861-1941)

Tuesday, September 15, 2009

HAS PANSY'S SHIP "COME IN" or "SAILED" ??

I guess the answer is: a bit of both. And you should know right now that I am seriously breaking "Pansy Protocol" with this post. I NEVER put anything "out there" until it is a Completely Finished Big Picture and I always hang it up with at least a dozen sturdy railroad spikes. Now I am flinging out a bunch of out of focus, poorly framed snapshots on pins and needles. I am a wreck.

What is wrong with me? Who, with "inoperable, incurable, unknown primary cancer", would not pay Cash American Dollars (hell, I'd even throw in some Fake Australian Pesos if that would help) to be told they had an 80% chance of being cured? I have actually lived long enough to have science come through for me. What the fuck are THOSE odds?

My oncologist called me on the phone last week and said he knew what kind of cancer I have and that I now have a chance at a CURE. I have "nonresectable bile duct cancer" and I can have a liver transplant. I gasped and shouted at him "WHAT? You could not be scaring me more or shocking me more if you tried." I am certain he put his phone on "mute" after that first of many more shrieks out of me during our conversation.

There was a real disconnect between my doctor thinking he was telling me good news and me hearing words that instantly made me want to run and hide under my bed. Some big ass (turns out it was mine) prevented me from getting completely under that bed and as much as I struggled and yelled "no no no no no", he deteminedly pulled on my legs. Good thing I had just shaved them. And, worse, he was not "pulling my leg." Then I spent the next 72 hours like a wild animal feverishly trying to chew off my leg to free myself from this trap I suddenly felt I was in.

For once in my head-in-the-sand approach to my cancer, I went all internetty. And inner-nutty, too. When I hung up the phone after talking with my doctor I was alone in my house. Good thing, because I scared not only myself but all the pets with the primal howl that came out of me and I was close to hysterical: crying and incoherent. Mr. Pansy happened to call me and I sounded like I needed an ambulance.

Even when I went on the internet and found "good" information, STILL I have continued to mope around in a puddle of tears and flop-sweat.

PROS:
--We now know I have bile duct cancer. All this time it has been "undiagnosed primary".
--It does not matter if we had known this 6 years ago. Or even sooner. So no angry "why didn't/couldn't you find this out sooner?"
--Because until fairly recently a liver transplant for bile duct cancer patients was NOT an option. Why waste a liver on someone whose cancer might come back?
--We know my cancer's name because my doctor HAD to do a liver biopsy a couple weeks ago. (more on this later)
--Bile duct cancer liver transplants have an 80% success rate (live for 5 years)
--I can have a live donor and don't have to wait for a dead donor. [looking at YOU to go get tested. har!]


CONS:
--if it doesn't work I am dead on the spot. I will lose what time I would have had left if I had not done the transplant.
--if it does work I would need to take immunosuppressive drugs forever. And they "can" cause high blood pressure (already got that); high cholestrol (who cares); diabetes Type 2 (that's a biggie but.......).


I just want so much to keep on with my cancer life "as usual": the weekly chemos, routine CT scans, occasional port replacement surgery, the new addition of occasional rogue tumor removal via RFA (radio frequency ablation). I truly feel so Perfectly Healthy. I can do anything I want and those things I no longer can do I am okay with not doing them.

And what's with my onco doctor? He is my Second Husband. Why is he trying to "divorce" me? haha.

Why do I have to make a "Pansy's Sophie Choice" of throwing away everything on a risky transplant?

Dammit, I really do know that my doctor IS giving me good...fuck, make that: GREAT NEWS. I can have a liver transplant. It is considered a cure. But now I know Just How Easy it is to hate that dreadful "5 years" timer overhead.

I am surgery-phobic. I could never get that rockin' set of boobs no matter if they were free. I could never do a face lift or tummy tuck or any kind of cosmetic surgery. I don't know why. Just not on any lists of mine.

In fact, the ONLY list I have ever had is my "TO DO" list. Of men. AFTER Mr. Pansy dies, so you can just go slap down that tent in your pants now, boys. Stupid horndongs. (nice typo/pun there, Pansy) Sheesh!

THIS ONE IS THE BIGGIE:

I truly cannot keep my "current cancer life as is." That ship has already long sailed away. And I didn't even really know it until right now.

At the beginning my doctor told me that if they knew that I had, say, liver cancer (since that is where the tumors are) they would have just done a liver transplant and we would have all gone on our merry ways. But with an "undiagnosed primary" all they could do was try chemo and see what happened. As we all know, I totally snuck under that limbo stick.

He also declined over the years to do another biopsy because a biopsy leaves a slight trail of loose cells which could rile things up and make the cancer go "boom". And since everything was "working", the risk of a biopsy rocking the boat was not worth it. And everything WAS working until.........

Summer of 2008 a singular tumor went rogue. But it was a tumor that had been there since Day One, so we took a chance on an RFA and, as we all know, I really snuck under that limbo stick. Sprained myself a little bit with the "post ablation syndrome" but even that was actually just another adventure.

My doctor is a wonderful guy and he really will not play "self fulfilling prophecy" games. So he does not go very much into the "what ifs" of anything. We just deal with the "what is-ers". But when that first rogue tumor happened, that is when my doctor started NOT telling me something.

Spring of 2009 another singular tumor has gone rogue. And it is a brand new tumor. Well away from all other tumors. Now my doctor had his back unwillingly shoved up against his own wall. The risks of a liver biopsy of this new tumor were outweighed by the fact that a brand new tumor is seriously bad shit news. I do not think he expected at all to learn what kind of cancer I have. That is ANOTHER medical advance that has occurred over just these past 6 years. And, now that we know, it does explain why my cancer is acting the way it is. Bile duct cancer is a very tenacious cancer that will do all it can to overcome chemo and it appears it has found a crack in my armor.

And here I thought I had just jumped into the ocean and was swimming for all I was worth. Who knew I was still tethered to that fucking cancer ship? Guess I'm gonna have to grab that tether and learn how to waterski. I already know how to "regular" waterski and even single ski. Now I have to also fucking throw in jumping tricks, probably while skiing backwards? Hmmm. What shall I wear?
[pulls on Big Girl Ruffly Rhumba Panties]

I TRY to keep remembering my deal with God so I am also upset that I am upset At All. I was supposed to not get upset ever again. Another thought that trails through my brain is this: if not for the brave patients and doctors IN RECENT TIMES going for The Brass Ring there would be no history of successful bile duct cancer transplants and I still would not have a chance. Now I have 80 chances (or some mangulation of math). Too bad that ring so closely resembles one of those Rings of Hell we all hear about. haha!

If they could step up to the plate, I really ought to at least honor them by trying to step up to my own [damn fucking piled with shit] Big, Shiny, Pretty plate. [makes forced smile]

I cannot wait to see my doctor tomorrow and hear what he has to say. [grunts for awhile] Well. I see I have lost my powers to "move the space and time continuum" so evidently I am going to HAVE to wait. hahahhahaha!

It's One Day At A Time for now. Tomorrow I say "go" to the doctor. dammit.
Hope I get time enough to buckle up.

2 comments:

Patty(Sunshine1) said...

WOW Pansy, what really great news! It really is amazing how far medicine has progressed.

A transplant option is FANTASTIC news. It gives you hope, that maybe you didn't want to deal with and is certainly scary but the success rates can really be quite good.

There is quite a bit adjustment to the meds and lots of things you have to be careful of but they tell you all of that.

Even better, you can have a living donor? I thought that only possible w/kidneys, but perhpas they just need a sliver of the liver, as they do with lungs, rather than the whole thing. Although, in my Moms case someone did have to die and she got both of their lungs.

It sounds like you are confused as to what to do given this news. And really, what conflicting emotions you must have right now. But this is hope and I wish you all the best in your decision and search for a donor!

Patty
sunshine1

Hancey said...

If the Palmetto grasses can cope up with the stress, it will be healthy and dense and will be able to resist disease. Sometime the disease may spread and it becomes out of any control. However, the disease resistant cultivars can be implemented to avoid future problems.