It's taken me awhile to process this event and some of you know the story but here it is again, anyway.
People I know think I am so "brave" with my cancer. It's because they believe that bullshit about cancer. It uses its Big Bad Scary Muthafucka street rep to scare people who don't have cancer. Getting cancer is not a good way to learn that it is actually a cowardly pathetic chickenshit that has no purpose other than to lie in wait for its chance to attack when no one is looking. Come out front and center, Cancer. Then we'll see who's the Real Muthafucka.
Since I got cancer I think of myself this way: I have become my own Special Needs person. I still love me, take care of me, am glad for what I can do, proud of what improvements I achieve, and once in awhile I even mope around because Pity Parties are a part of NORMAL people's everyday lives.
I will never again be the person I used to be. But every day each of us is no longer the person we were yesterday. At best we are one day older, one day more feeble, one day closer to dying. Everyone has to go through that even if they don't ever have cancer. Every day is a day that might turn out to be the day you embark on a "New Normal". You make a decision that changes the course of your life. An event occurs that changes the course of your life. Some are positive (marriage, babies); some totally suck (marriage, babies). I mean: Some are "not so positive." Like cancer. But "totally suck" or "not so positive"......."New Normals" don't deserve to be given any more power than they actually have. Why should cancer be given any Special Power? Power to the People! [Pansy was a Black Panther back in the day, doncha know?! After she got done being an Aztec Warrior Amazon.]
I have also always been a Daredevil. Got that "spark" that makes me a Fierce Competitor. It's all good so long as my "spark" is channeled into Legal Activities! hahahhaa! Just kidding. I always been a Good Girlie. But I have learned that when a Daredevil Patient meets a Daredevil Doctor that's when the REAL sparks fly. And they can burn the house down.
Cancer is supposed to be "one for all, all for one"....."together we stand, divided we fall"......"in for a penny, in for a pound" kinda shit. As in: the tumors either ALL grow or they ALL shrink/stay stable. Whatever they do it's supposed to be ALL of them. Not Pansy's tumors. The largest tumor on my liver has long been 2.5cm. Then, one day last year it--and only it--suddenly grew to 3.6cm. Everyone went on High Alert (that's why we were all wearing orange there for awhile) and the frequency of scans was increased. The tumor noticed all the High Alert Orange so it hunkered down and stayed at 3.6cm for several months. Fooled us all. We "Stood Down" and went on with our partying ways. Then a scan showed the tumor was suddenly 5.0cm. After the doctors and I did an appropriate Morale-Raising Cheer: "Fuck. Fuck. Double Fuck. What the fuck?" we all knew it was time for Aggressive Attack. But what to do? We had two options: RadioFrequency Ablation (RFA) or SNAKE VENOM!!
Well, you fucking know Pansy wanted that Snake Venom, twice! Woohoo! And, since the tumor was Hugely Beyond the limits for RFA (it is only for 3.0cm or smaller tumors due to technological limitations)it really looked like Snake Venom was gonna happen. They inject it all around the tumor, the venom kills off the blood supply lines, the tumor starves and dies. I was so excited about having those bragging rights. Because Pansy has reflexes like a cobra and when cancer grabbed her, she grabbed cancer's wrist right back and said "You're gonna die, too, cuz I am taking you with me."
Then, The Cowboy rode into town. He is my onco surgeon and he actually IS called "The Cowboy" in the medical world. He makes Clint Eastwood look like a singing telegram bellhop. He said "It's gonna be an RFA showdown, so spur up, bitch." Perhaps he used other actual words but that's what Pansy heard. The surgery went way longer than predicted and then The Cowboy tells Mr. Pansy THIS fucking downer when he came out to update Mr. Pansy: "Well. We got the surgery done." WTF? We all know the surgeon is supposed to say, in a very upbeat voice: "Wow! That went Great!"
It didn't help that I had a preview/premonition dream two days before the surgery wherein I was flying...you know, with typical dream flying powers--all on my own. Someone was with me, holding me on my left side, and we flew over my liver and I saw it in its entirety. We studied all of it and I could tell it was in trouble. The other flier (not male or female) pointed out everything and said "This is serious. We are not kidding around here." I woke up in kind of a funk. And not the good kind of James Brown FUNK.
After the surgery I woke up in great pain, despite the Kick Ass Big Time Post Op Drugs they had pumped into me. I was medically stable and this is an outpatient procedure so home I went. On the Third Day (sounds Biblical!!) I went off the edge of the cliff. Pansy The Most Manned Up Woman In The Universe was a fetal ball of vomiting and crying in her bed. Mr. Pansy and Pansy Jr. took turns literally staying physically in the room with me they were so freaked out by this never-before-seen behavior from Pansy Da Man. On a pain scale of 1 to 10....this was an 18.
The surgeon even gave us his personal cell phone number. Over that weekend he guided me through overdose levels of the various drugs prescribed for me. When the pain got down to about 14, I was able to "rest" for maybe 30 minutes. Others might describe it as "blacked out". In hindsight, THAT'S when we should have taken me to the hospital. This went on for 10 days before I was no longer bed ridden. I was able to sneak in a 4th of July parade viewing involving my sister but that took all of my Super Powers to pull off even though it was totally worth it.
When I saw the surgeon at the 2 week followup visit he questioned me extensively about what I had experienced. It was "post ablation syndrome" and I got every single symptom that defines this syndrome. All of them are bad. It always starts on....Day Three after surgery! No one can predict what patient will get it or how severely they will have it. It is Very Rare (I am beginning to get just a WEE BIT so fucking tired of being Very Rare!) and my level of severity was Even More Very Rare.
Well....let's think. We were already breaking the rules by even attempting this surgery due to the size of the tumor. And then it turns out that the tumor, which was 5.0cm on the last scan before surgery.......was 12cm on the day of surgery. Any other surgeon would have just said "Close her up, I'm outta here." But, noooooooooo! The Cowboy dives in anyway. Which is why they make you unconscious beforehand so that you don't hear them all scream, retch and barf when they open up the Surprise Package in surgery. Thank you, Cowboy and God.
RFA is supposed to be a walk in the park kind of surgery. Really. Evidently MY fucking park was full of goddam rotten trees and sure as shit every one of them fell on me. Fuckers. Oh, and for Bonus Points my liver also got "knicked" during the surgery....on the "Glisson's capsule." DO NOT LET YOUR GLISSON'S CAPSULE GET FUCKING KNICKED EVER!!! hahahhahahahha!
It took weeks to fully recover but the last week of August I definitely felt I had turned the proverbial corner. Naturally, like all wounded wild animals, I do a masterful job of acting "Healthy And Well" so that no predators will think they have a chance at me. Since the surgery on June 25, I have managed to ride my bicycle 1,081 miles. And stay on schedule with my chemos. And even work at my job. Oh, and fuck that Mr. Pansy a lot.
Exercise (bike riding/dieting) has undoubtedly literally saved my life. I am so glad I already have decades of physical activity in my body. I fret for all the people out there who haven't already "been there/done that". How do they get over the mental trap of "I can't do that" re exercise? I know my doctors have gone to the mattresses for me at their "committee meetings" simply because they can see I am worthy of backing because I am actually likely to survive even horrible procedures. I hope they are beginning to run out of those! hahahaha! Now, finally, I am getting a clue about what people mean when they say those stupid platitudes such as "a good attitude is why you are doing so well." Those are not quite the right words. Plus, well, the doctors want to keep me around since I AM so foxy and all.
The only "take away" I can remotely snatch from my jaws of death experience is: you really, really cannot die from pain. I am "glad" I got to experience this misery because it is important to know I do have limits but that I still got through it. It gives me a deeper sense of I can do this and....
IF A PANSY CAN DO IT, ANYONE CAN DO IT.
You won't do it with as much flair and swearing and certainly no Mr. Pansy fucking, but you can't always have everything. Oh. And next time Pansy thinks "maybe I need an ambulance" she is so fucking gonna call the goddam ambulance! Good godawmighty, what was she waiting for? The pain to get worse?
And the shopping goes on and on and on....!!
Something Pansy Found 2 Lifetimes Ago
Let me not pray to be sheltered from dangers, But to be fearless in facing them.
Let me not beg for the stilling of my pain,
But for the heart to conquer it.
Let me not look for allies in life's battlefield,
But to my own strength.
Let me not crave in anxious fear to be saved,
But hope for the patience to win my freedom.
Grant me that I may not be a coward,
Feeling your mercy in my success alone,
But let me find the grasp of your hand in my failure.
Rabindranath Tagore (1861-1941)
Let me not beg for the stilling of my pain,
But for the heart to conquer it.
Let me not look for allies in life's battlefield,
But to my own strength.
Let me not crave in anxious fear to be saved,
But hope for the patience to win my freedom.
Grant me that I may not be a coward,
Feeling your mercy in my success alone,
But let me find the grasp of your hand in my failure.
Rabindranath Tagore (1861-1941)
Friday, October 10, 2008
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3 comments:
...and here I was wonderin'..."Why don't she write...???"
You truly are SuperWoman, Girlfriend...fried liver and all...may your stories be published, and may you and Mr. Pansy live sublimely off of the royalty checks!
SuperWoman? Phooey! I think she's a drama princess.
One worthy of an Oscar... with a tiara.
Pansy could never "charge" for her ESSENCE. She is a proud and FREE Guerilla Street Performer. Although some misspell it and think she is a proud and FREE Gorilla. Just cuz she got that hairy body thang goin' on.
Where does a gorilla perform?
Anywhere it wants to!
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